Bill Would Regulate Handling Of Consumer-Generated Health Data

Healthcare IT Today

A pair of senators have filed a bill which would impose new regulations on how companies manage data generated by consumer technologies such as health apps, wearables and direct-to-consumer genetic tests. The Protecting Personal Health Data Act, which was filed by Sen.

Our Mobile Health Data: Shared, Identifiable, and Privacy-Deprived

Health Populi

As more mobile app users — consumers, patients, and caregivers — use these handy digital health tools, much of the data we share can be re-identified and monetized by third parties well beyond those we believe we’re sharing with.

LunaDNA offers company shares in exchange for health data

Mobi Health News

The company claims it is the first to work with the SEC to figure out how consumers could exchange health data for equity.

Sicker Consumers Are More Willing to Share Health Data

Health Populi

People dealing with chronic conditions are keener to share personally-generated data than people that don’t have a chronic disease, Deloitte’s 2018 Survey of U.S> > Health Care Consumers learned.

Patients more willing to share mobile mental health data with doctors than family, EHRs

Mobi Health News

In a small study published in JMIR, patients were more willing to share health data, such as activity and sleep trackers, than personal data, like call logs and location.

Health Data Outside HIPAA: The Wild West of Unprotected Personal Data

E-CareManagement

“…the average patient will, in his or her lifetime, generate about 2,750 times more data related to social and environmental influences than to clinical factors” — McKinsey analysis. Read the rest of our article on The Health Care Blog.

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The promises of consumer health data dominated CES 2019

Mobi Health News

From on-stage demos to expo floor chit chat, attendees couldn't resist discussing what data collection and analysis could bring to consumer healthcare technology

New NHS mental health data hub, Babylon Healthcheck and more UK digital health news briefs

Mobi Health News

NHS Digital introduces new mental health data hub, Babylon creates new Healthcheck feature, institute launches £3m competition paving the way for a UK-wide infrastructure for health data research and EY releases preliminary findings from survey on digital health attitudes

New Series on THCB — The Health Data Goldilocks Dilemma: Privacy? Sharing? Both?

E-CareManagement

She was a wise girl who was aware that there was great value in health data. Goldilocks learned that there are risks of TOO LITTLE health data being shared: That she and her care providers would not have the best information for clinical decision making.

The Perils of Making Your Health Data Available Online

Electronic Health Reporter

This article is copyrighted strictly for Electronic Health Reporter. It’s easier than ever to put health data on the Internet. Fitness trackers, health apps and other connected devices can give people a lot of insight into their health. Unfortunately, that’s not the only way that their health data ends up getting used. Health insurance companies are particularly interested in getting their hands on all […].

'Community-Owned' Genomic and Health Data Platform Raises $4.6M

hea!thcare innovation - Clinical IT

LunaDNA platform plans to take novel approach by rewarding individuals for sharing health data

A call to upgrade public health data

Morning eHealth

The latest on CMS’ AI challenge — Study finds about one in 10 Instagram posts advertising drug sales

All of Us enrollees can now share health data from their Fitbit accounts with researchers

Mobi Health News

The Fitbit BYOD program is the first digital health initiative launched within the NIH's project to build a longitudinal database of 1 million Americans

Measles Epidemic Exposes Performance Gaps In U.S., Global Health Data Analytics

Electronic Health Reporter

This article is copyrighted strictly for Electronic Health Reporter. Measles continues to spread in the United States as health officials seek to stem the worst outbreak of the disease in decades. Global Health Data Analytics appeared first on electronichealthreporter.com. Editorial Condusiv Technologies health data analytics James D’Arezzo Measles EpidemicIllegal copying is prohibited.

Open Health launches PatientSphere feature for patients to monetize health data

Mobi Health News

The platform will now let users share health records with pharma companies, health systems and insurers for remuneration.

Health data aggregation, centralization platform 1upHealth scores $2.38M in seed funding

Mobi Health News

The round was led by Eniac Ventures, Social Leverage and Meridian Street Capital.

Why France's 2019 Health Bill will be key in harnessing health data for research

Lloyd Price

The access and use of personal health data for research purposes is increasingly receiving press attention. Undeniably, there are renewed possibilities of conducting health research by processing and cross-referencing large volumes of data through sophisticated algorithms.

Accenture publishes final patient-generated health data report for ONC

Mobi Health News

In January, Accenture completed its two-year contract with the Office of the National Coordinator for Health IT to create a white paper to advise the industry about implementing patient-generated health data

Manage your health data, or trust blindly? Setting the stage for a data disaster, part 2

Society for Participatory Medicine

That’s pretty much what happened to me ten years ago this month, except it wasn’t my money, it was my health data. That was ten years ago this week, and to understand what’s happening in health data right now, it helps to know how we got here.

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Startups Plan the Health Data Gold Rush

Lloyd Price

Then they collate and sell this information to pharmaceutical companies and others who rely on such data for research and marketing. Until now, the proceeds from the booming health data–brokering industry have seldom been seen by the people who contribute the information in the first place.

Google, University of Chicago face class action lawsuit following health data sharing partnership

Mobi Health News

The suit accuses the hospital system of misleading patients about how their data is being used.

Solving the Riddle of Healthcare Data Liquidity: 3 Challenges To Preventing the Simple Exchange of Health Data

Electronic Health Reporter

This article is copyrighted strictly for Electronic Health Reporter. The American Medical Association (AMA) identifies one of the biggest challenges in healthcare today as the secure sharing and use of trusted health data in real time across the complex U.S.

Patient-generated health data can be used to improve patients’ health – here’s how

Mobi Health News

About the author: Emily Mitchell (PMP) is a senior manager within the Accenture Federal Services Health and Public Service practice

Value of Patient-Generated Health Data

BHM Healthcare Solutions

Click HERE for how BHM develops high level protection for your data, addresses the c-suite cyber-security concerns, and proves it with HITRUST CSF. . Researchers interviewed leaders from health systems, EHR vendors and PGHD solution providers, as well as patients with chronic conditions.

Patients’ Expectations for Health Beyond Care: Think Food, Exercise, Emotions, Sleep and Finance

Health Populi

People want to make health with their health care providers, and they want more than care from them: most patients are looking for support with healthy eating, exercise, emotional support, sleep, stress management, social relationships, and financial health.

API expands health data into risk scores, but are consumers ready for it?

Mobi Health News

Matt Park, the general manager of the Swiss-based Dacadoo Americas, explains how the company’s health scoring app works and their bet consumers also want to calculate their real time health risks with a new component of the open API

FTC complaint accuses Facebook of exposing sensitive health data in groups

FierceHealthIT

A complaint filed with the Federal Trade Commission accuses Facebook of misleading its users regarding the private nature of closed Facebook groups and exposing users’ sensitive health data

#SPM2018 Hot Topic: Can a Market for Health Data also Protect Patients’ Rights to Their Data?

Society for Participatory Medicine

17 in Boston, attached to the prestigious Connected Health conference. We know that researchers need access to good quality data. As an SPM board member, I have the privilege of introducing Bill, who will speak about the value of aggregated health data from the researcher’s perspective.

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The Most Important Trends For Health in Mary Meeker’s 2019 Internet Report Aren’t About Health Care

Health Populi

The health care section of Mary Meeker’s 334-page annual report, Internet Trends 2019 , comprises 24 of those pages (270 through 293). For health care, the application of FHIR standards helps mobilize data for better health, turbocharging this trend.

Three Lessons To Learn From the UConn Health Data Breach

Electronic Health Reporter

This content is copyrighted strictly for Electronic Health Reporter. On February 21, UConn Health reported that personally identifiable information (PII) from 326,000 patients was compromised. Editorial cyber security training data breaches Ilia Sotnikov Netwrix UConn Health

The Single Market for Healthcare in Europe: Learnings for the U.S.

Health Populi

When I’m in the UK later this week, I’ll address the challenge for the UK, Brexit and the National Health Service. Two key issues are in my work-radar this trip: digital health cross-border, and health innovation funding.

All of Us enrollees can now health data from their Fitbit accounts

Mobi Health News

The Fitbit BYOD program is the first digital health initiative launched within the NIH's project to build a longitudinal database of 1 million Americans

NHS Patient Data Could Generate Billions For UK, But Is It OK To Go Down That Road?

Healthcare IT Today

I don’t know about you, but I don’t like the idea of governments selling off patient healthcare data. In her recent piece, EY global health sciences […].

Can AI Make Healthcare Human Again? Dr. Topol Says “Yes”

Health Populi

” Dr. Verghese asserts this in his forward to Deep Medicine , Dr. Eric Topol’s latest work which explores the promise of artificial intelligence (AI), Big Data, and robotics — three legs of the Fourth Industrial Age stool. [If

New Tech Tonics Podcast Episode: Andy Coravos: Championing Responsible Digital Medicine

Digital Health

David Shaywitz Digital Health Healthcare Information Technology Healthcare Policy Medical Devices Patient Safety Sensors & Wearables Tech Tonics Podcast Uncategorized Andrea Coravos Andy Coravos connected social media david shaywitz digital biomarkers digital health data Elektra Labs healthcare hacking IDEA Pharma tech tonics podcast

Best Practices in Utilizing Patient-Generated Health Data: Opportunities in Preventive Wellness, Population Health, and Remote Care

Healthcare IT News - Telehealth

Are all patients up to the task of managing their own health data? Some CIOs say no

FierceHealthIT

CMS Administrator Seema Verma has made it clear that “patient data belongs to patients." But, will all patients truly be up to the task of managing their own health data? Some CIOs say no