Patient Innovators at #FHIR DevDays – follow up

Health Intersections

ePatient Dave has blogged about the Patient Innovator track at FHIR DevDays

An Easy Way we can Help Encourage Healthcare Conferences to Include Patients & Advocates

Society for Participatory Medicine

I think again of ePatient Dave’s refrain: “Let Patients Help!”. I have attended hundreds of conferences: patient experience, patient education, health tech, health literacy, shared decision making — and the best part has always been meeting other advocates, patients, and family caregivers.


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Doc Tom Awardees Announced at SPM2018 Conference

Society for Participatory Medicine

His spirt and work led to the creation of the Society , though his peers & followers, ePatient Scholars. The first award for contribution to SPM was a shared award – to Dave “ePatient Dave” DeBronkart and Dr. Danny Sands. His blog ePatient Dave: Toward a new science of patient engagement i s an ecosystem on its own. On October 17th, the Society enjoyed their 2nd conference in Boston.

Thinking About Isaiah, User-Centered Design, and Healthcare – Heard at Health 2.0

Health Populi

We’re going beyond ePatient Dave’s demand of “Give me my damned data (data about me).” Turning 13, “we’re an unruly teenager on our hands now,” Matthew Holt invoked the start of the annual Health 2.0 Conference, convening this week in Santa Clara for its 13th year in existence. Started with Co-Founder Indu Subaiya, Health 2.0 was conceived as a “movement,” Matthew explained. When (we were) younger, we broke some things.”

#CochraneForAll + #BeyondTheRoom = #PatientsIncluded on blast

Society for Participatory Medicine

For four days in September, my old life (net news producer) and my new life (epatient citizen scientist policy wonk storming the barricades in service of systemic shift) meshed into a perfect little machine. Red Hot Chilli Pipers at the Colloquium | image credit: Simon Williams Photography.

Give Me My DaM Data::The Revolution

Society for Participatory Medicine

ePatient communities are inherently Open Source. SPM advocates vociferously for patient ownership of their own data. Success would be revolutionary. But revolutions do not suddenly appear. They result from persistent long-term effort, strategy, and tactics. Key milestones often only appear in hindsight. The revolution won’t happen with patients alone. The partnership with their physicians and other trusted licensed clinicians is critical.