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Patient Innovators at #FHIR DevDays – follow up

Health Intersections

ePatient Dave has blogged about the Patient Innovator track at FHIR DevDays.

FHIR 58
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AI: Patients Included

Health Populi

Cordovano partnered with “ePatient” Dave DeBronkart to create and promote a hashtag, #PatientsUseAI , as a social media rallying call-to-action for AI: Patients Included.

EHR 255
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An Easy Way we can Help Encourage Healthcare Conferences to Include Patients & Advocates

Society for Participatory Medicine

I think again of ePatient Dave’s refrain: “Let Patients Help!”. Expand propagation of information tweeted during a conference as measured by social media impressions created (beta=1,700,000) compared to physicians (beta=270,000, P < 001). Deepen engagement in the tweet conversation as measured by replies to their tweets (beta=24.4)

ePatients 130
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Doc Tom Awardees Announced at SPM2018 Conference

Society for Participatory Medicine

His spirt and work led to the creation of the Society , though his peers & followers, ePatient Scholars. The first award for contribution to SPM was a shared award – to Dave “ePatient Dave” DeBronkart and Dr. Danny Sands. Many impressive names were nominated for both awards by SPM members.

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Thinking About Isaiah, User-Centered Design, and Healthcare – Heard at Health 2.0

Health Populi

We’re going beyond ePatient Dave’s demand of “Give me my damned data (data about me).” ” We’re now in an era where the vanguard of experienced patients have begun to demand data control. Indu pointed to Dr.

ePatients 172
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Give Me My DaM Data::The Revolution

Society for Participatory Medicine

ePatient communities are inherently Open Source. Open Source means sharing, open exchange of ideas, learning together by doing and trying in a supportive environment. Best ideas win. What works wins. Communities form to multiply efforts and share. Open source technology for Give Me My DaM Data is a natural fit.

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#CochraneForAll + #BeyondTheRoom = #PatientsIncluded on blast

Society for Participatory Medicine

For four days in September, my old life (net news producer) and my new life (epatient citizen scientist policy wonk storming the barricades in service of systemic shift) meshed into a perfect little machine. Here are the pieces I produced, with links to listen and some notes on each one: UCLA data scientists Dr.