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Health Consumers Value Sharing and Downloading Health Data, But Privacy Concerns Remain

Health Populi

are growing their health IT muscles and literacy, accelerated in the coronavirus pandemic. In particular, health consumers in America want more access to their personal health data, a study from the Pew Research Center has found in Americans Want Federal Government to Make Sharing Electronic Health Data Easier.

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My Health, My Data – Thinking Consumers, Privacy and Self-Care at HIMSS 2023

Health Populi

The Washington State legislature passed House Bill 1155, aka the My Health, My Data Act , last week. The bill expands privacy protections for Washington State’s health citizens beyond HIPAA’s provisions. ” That could include such data tags as cookie identifiers, device identifiers, and IP addresses.

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Health Data Outside HIPAA: Simply Extending HIPAA Would Be a #FAIL

E-CareManagement

Some have called on policymakers to extend HIPAA to cover mHealth apps and other online platforms. In the latest post in our series — “The Health Data Goldilocks Dilemma: Sharing? ” — Deven McGraw and I argue that extending HIPAA is not a viable solution. Miller, Jr.

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Health Data Outside HIPAA: The Wild West of Unprotected Personal Data

E-CareManagement

“…the average patient will, in his or her lifetime, generate about 2,750 times more data related to social and environmental influences than to clinical factors” — McKinsey analysis. Read the rest of our article on The Health Care Blog. It’s part of the series “The Health Data Goldilocks Dilemma: Privacy?

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Data Well-Being: A Pillar of Health Citizenship for US Consumers

Health Populi

consumers believe they have an obligation to share personal health information to stop the spread of the coronavirus. However, only 44% would be willing to share their personal data with a national database, a MITRE study learned. adults 18 and over in mid-June 2020 to gauge peoples’ perspectives on health data and privacy.

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Protecting Health Data Outside of HIPAA: Will the Protecting Personal Health Data Act Tame the Wild West ?

E-CareManagement

In the previous post of our series we described the “ Wild West of Unprotected Health Data.”. Will the cavalry arrive to protect the vast quantities of your personal health data that are broadly unprotected from sharing and use by third parties? Read the full post on The Health Care Blog.

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Do Mental Health Apps Sell Your Client’s Sensitive Data to Data Brokers?

Telebehavioral Health Institute

A February 2023 report published by researcher Joanne Kim outlines the results of a two-month study of how data brokers sell sensitive data mental health data collected from mHealth mental health apps. These companies include BetterHelp , Cerebral, GoodRX, Monument, and Workit Health.