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Building Trust and Truth in Patient Social Networks

Health Populi

.” Trust and truth underpin health engagement, we learned in the first Edelman Health Engagement Barometer launched ten years ago. Those were the early days of the formation of patient social networks [Patients Like me was founded in 2004, and WEGO Health and Stupid Cancer in 2007].

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A Matter of Trust, Perception, Risk, and Uncertainty – The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions

Health Populi

First, some of the backstory: PLM was way ahead of its time, recognizing the power of peer-to-peer connections and the importance of data as currency long before many others in health care figured that out. Maslow’s Hierarchy of Needs is right on target here – if one is facing death or grave disability, the other risks fade to the back.