How Technology Can Help Overcome Barriers to Getting Effective Therapies into Patients with Ultra Rare Disorders
Healthcare IT Today
SEPTEMBER 28, 2022
Today, however, biotechnology companies like Invitae are meeting the patient at the time of genetic diagnosis (with their permission) and enrolling them in real-world natural history data collection. This same process is now being done at the individual and family basis through a distributed biotech model.
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