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Health Consumers Value Sharing and Downloading Health Data, But Privacy Concerns Remain

Health Populi

In particular, health consumers in America want more access to their personal health data, a study from the Pew Research Center has found in Americans Want Federal Government to Make Sharing Electronic Health Data Easier. I called this out in my 2019 book, HealthConsuming: from health consumer to health citizen.

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Data Well-Being: A Pillar of Health Citizenship for US Consumers

Health Populi

consumers believe they have an obligation to share personal health information to stop the spread of the coronavirus. However, only 44% would be willing to share their personal data with a national database, a MITRE study learned. consumers felt in April 2020 about sharing personal data with tech companies and federal agencies.

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The Pace of Tech-Adoption Grows Among Older Americans, AARP Finds – But Privacy Concerns May Limit Adoption

Health Populi

The same percentage of people over 50 own a voice assistant, a market penetration rate which more than doubled between 2017 and 2019, AARP noted in the 2020 Tech and the 50+ Survey published in December 2019. One-third of older people wouldn’t share their health data with any third party at all.

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Do Mental Health Apps Sell Your Client’s Sensitive Data to Data Brokers?

Telebehavioral Health Institute

A February 2023 report published by researcher Joanne Kim outlines the results of a two-month study of how data brokers sell sensitive data mental health data collected from mHealth mental health apps. A 2019 study documented that 20% of LatinX smartphone users were more likely to use a health app than Caucasians.

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Addressing Health Equity Must Include Digital Equity Beyond Access To Medical Services and Insurance

Health Populi

The 21st Century Cures Act emphasizes patients’ control of personal health information. ONC rules issues in March 2020 called for more patient-facing health tools and apps to bolster health consumer engagement and empowerment. Digital literacy combines with health literacy to bolster patient engagement.

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Melinda Gates: This is not a once-in-a-century pandemic.

Henry Kotula

You would have fought through the civil-liberties issues of people sharing their health information willingly or not willingly. Am I willing to share my health data so that you know if I got it? Preparing for the next epidemic is a whole different conversation. You’d have tests available from the get-go.

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Aspects of Social Determinants of Health: An Introduction

Healthcare IT Today

Sherri Onyiego, Medical Director for the Texas Market at Equality Health. They use claims data to track use of emergency rooms, medical equipment, and generic versus brand medications. They also obtain public health data by ZIP code and data from a Health Information Exchange (HIE).