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My Health, My Data – Thinking Consumers, Privacy and Self-Care at HIMSS 2023

Health Populi

The Washington State legislature passed House Bill 1155, aka the My Health, My Data Act , last week. The bill expands privacy protections for Washington State’s health citizens beyond HIPAA’s provisions. Governor Jay Inslee is expected to sign this into State law later this year.

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Health Data Outside HIPAA: The Wild West of Unprotected Personal Data

E-CareManagement

The McKinsey “2,750 times” statistic is a pretty good proxy for the amount of your personal health data that is NOT protected by HIPAA and currently is broadly unprotected from sharing and use by third parties. Read the rest of our article on The Health Care Blog.

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Protecting Health Data Outside of HIPAA: Will the Protecting Personal Health Data Act Tame the Wild West ?

E-CareManagement

Congress is seriously considering bipartisan legislation — the “Protecting Personal Health Data Act” — to better protect the privacy of consumers’ personal data. Read the full post on The Health Care Blog. appeared first on e-CareManagement blog.

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Health Consumers Value Sharing and Downloading Health Data, But Privacy Concerns Remain

Health Populi

are growing their health IT muscles and literacy, accelerated in the coronavirus pandemic. In particular, health consumers in America want more access to their personal health data, a study from the Pew Research Center has found in Americans Want Federal Government to Make Sharing Electronic Health Data Easier.

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Health Consumers Expect Healthcare to be Digital (and Secure), Philips Future Health Index Finds

Health Populi

Among the top obstacles are lack of access to data-sharing systems coupled with lack of interoperability between health IT investments, preference for paper and phone, and data privacy and security concerns. The Dilemma is the risk of “too little” or “too much” health data being shared.

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Data Well-Being: A Pillar of Health Citizenship for US Consumers

Health Populi

Years ago, the Harvard Privacy Project led by Latanya Sweeney at the time had addressed privacy as, “the sword and the shield of public health.”

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Prelude to Health 2.0 2019: Thinking Consumers At the Center of Digital Health Transformation

Health Populi

.” We’re at a turning point in the post-Facebook/Cambridge Analytica and Equifax breach environment, where patients and consumers still believe their health care providers and doctors are their most-trusted data steward. Deven and Vince will teach me more on this evolving challenge that touches all of us.