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A Matter of Trust, Perception, Risk, and Uncertainty – The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions

Health Populi

Fear about an Ever-Changing Context : When PLM first formed back in 2004, a lot of the data sharing issues we speak about hadn’t even been conceived of yet. Imagine if, in 2004, you shared data with PLM (or any organization) with an expectation that it would always be shared in a de-identified way. Probably not so great. Not really.