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Sickle Cell Disease Foundation Announces Research Collaboration with FDA on the Use of Digital Health Technologies to Bridge Health Care Gaps

Digital Health Global

Specifically, the collaboration will evaluate how digital health technologies can be used to better understand patients’ real-world experiences and evaluate meaningful benefit to those living with rare diseases, like sickle cell disease, for medical product development and public health purposes. About the U.S.

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North Carolina launches new stroke registry linked to NC HealthConnex

Healthcare IT News - Telehealth

"By acting as a health data utility, it provides a central hub for clinical data that can advance compatibility across networks and promote use cases, such as the stroke registry." In 2019, the NC HealthConnex modernized , combining the InterSystems HealthShare HIE with SAS’s health analytics.

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