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Patient/caregiver letter supporting proposed ONC rule on improving flow of our data

Society for Participatory Medicine

To do this we must be involved in our health data if we want, as our stories below will make clear. . Yet, somehow, in the year 2020 in the most technologically advanced nation on the globe, we, as American patients, remain unable to easily and quickly access our own health data, or to decide how it is used.

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Weekender 4/5/19

HIStalk Weekender

The patient does not own the data. The data are about them and they have a right to see and distribute. Do they pay a record storage fee to the HC org to hold their data? Data owner ). Readers Write: File-Sharing And HIPAA – How You Can Keep Health Data Secure in an Era of Collaboration. Clustered ).

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