Our Mobile Health Data: Shared, Identifiable, and Privacy-Deprived

Health Populi

As more mobile app users — consumers, patients, and caregivers — use these handy digital health tools, much of the data we share can be re-identified and monetized by third parties well beyond those we believe we’re sharing with. This compromised health data privacy scenario comes out of research published this month in the BMJ , Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis.

Health Consumers Value Sharing and Downloading Health Data, But Privacy Concerns Remain

Health Populi

are growing their health IT muscles and literacy, accelerated in the coronavirus pandemic. adults 18 and over to determine peoples’ perspectives on personal health information in light of their pandemic era experiences. People in the U.S.


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Despite Greater Digital Health Engagement, Americans Have Worse Health and Financial Outcomes Than Other Nations’ Health Citizens

Health Populi

The idea of health care consumerism isn’t just an American discussion, Deloitte points out in its 2019 global survey of healthcare consumers report, A consumer-centered future of health. 85% of these patients believe health care costs in general are “too high.”

The Single Market for Healthcare in Europe: Learnings for the U.S.

Health Populi

When I’m in the UK later this week, I’ll address the challenge for the UK, Brexit and the National Health Service. While national health services funding and delivery modes will still have local models of organization and control, some over-arching concepts and cooperation are being forged. Two key issues are in my work-radar this trip: digital health cross-border, and health innovation funding.

Can AI Make Healthcare Human Again? Dr. Topol Says “Yes”

Health Populi

” Dr. Verghese asserts this in his forward to Deep Medicine , Dr. Eric Topol’s latest work which explores the promise of artificial intelligence (AI), Big Data, and robotics — three legs of the Fourth Industrial Age stool. [If If you don’t know the work of Dr. Verghese, and since you’re reading the Health Populi blog, you must get to know Dr. V now. This is familiar territory here in Health Populi where we cover every nook and cranny of dismal U.S.

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Health Disparities and the Risks of Social Determinants for COVID-19 – 14 Months of Evidence

Health Populi

Within just a couple of months of COVID-19 emerging in America, it became clear that health disparities were evident in outcomes due to complications from the coronavirus. ASPE analyzed data from 62,451,150 people who had 1 or more vaccine doses administered by 3-10-21.

Protecting Health Data Outside of HIPAA: Will the Protecting Personal Health Data Act Tame the Wild West ?


In the previous post of our series we described the “ Wild West of Unprotected Health Data.”. Will the cavalry arrive to protect the vast quantities of your personal health data that are broadly unprotected from sharing and use by third parties? Congress is seriously considering bipartisan legislation — the “Protecting Personal Health Data Act” — to better protect the privacy of consumers’ personal data.


Health/Care Everywhere – Re-Imagining Healthcare at ATA 2019

Health Populi

Ann Mond Johnson assumed the helm of CEO of ATA in 2018, and she’s issued a call-to-action across the health/care ecosystem for a delivery system upgrade. Best Buy Health has been developing partnerships in healthcare, in B2B2C mode, channeling into peoples’ homes for healthy living and aging well “in place.” Joining us on the panel will be Kaiser-Permanente as a prospective partner in such a retail health-to-services-to-home vision, underpinned by data and predictive analytics.

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Isn’t It Eyeconic? Vision Care in the Evolving Health Care Ecosystem

Health Populi

The vision/optical industry is one piece of the health/care ecosystem, but the segment has not been as directly impacted by patients’ new consumer muscles until just about now. I was grateful to have an opportunity to share my views with attendees on the vision patient as health consumer through the health economic lens. There’s a new data continuum with a shift in the relationship between the deliverers of services and their buyers.


Loneliness, Public Policy and AI – Lessons From the UK For the US

Health Populi

There’s a shortage of medical providers in the United Kingdom, a nation where healthcare is guaranteed to all Britons via the most beloved institution in the nation : The National Health Service. The NHS “supply shortage” is a result of financial cuts to both social care and public health. ” This topic set the context for my conversation with Maneesh Juneja, digital health futurist and global speaker on health, technology and people.

Ten In Ten: Manatt’s Healthcare Priorities to 2031

Health Populi

health care system, especially laying bare inequities and inertia in American health care, explained in The Progress We Need: Ten Health Care Imperatives for the Decade Ahead from Manatt Health. Achieve health equity. Address social determinants of health.

Health Data Outside HIPAA: The Wild West of Unprotected Personal Data


“…the average patient will, in his or her lifetime, generate about 2,750 times more data related to social and environmental influences than to clinical factors” — McKinsey analysis. The McKinsey “2,750 times” statistic is a pretty good proxy for the amount of your personal health data that is NOT protected by HIPAA and currently is broadly unprotected from sharing and use by third parties. Read the rest of our article on The Health Care Blog.


The Pace of Tech-Adoption Grows Among Older Americans, AARP Finds – But Privacy Concerns May Limit Adoption

Health Populi

About four in 10 people 50+ are interested in “purchasing” (the word used in the AARP survey) several digital health innovations: Communicating with a health care provider that you’ve taken a medication as prescribed.

New Series on THCB — The Health Data Goldilocks Dilemma: Privacy? Sharing? Both?


She was a wise girl who was aware that there was great value in health data. Goldilocks learned that there are risks of TOO LITTLE health data being shared: That she and her care providers would not have the best information for clinical decision making. That next generation technologies, which rely on vast quantities of data (e.g., She also learned that there are risks of TOO MUCH health data being shared: That her privacy and personal safety could be violated.

Redefining PPE As Primary Care, Public Health, and Health Equity – The Community PPE Index

Health Populi

” Perhaps Definition 3 in the OED could be updated by a blog published online in the September 25, 2020, issue of Health Affairs, A New “PPE” For A Thriving Community: Public Health, Primary Care, Health Equity. For more on this issue, see Health Populi here ].

Health Data Outside HIPAA: Simply Extending HIPAA Would Be a #FAIL


In the latest post in our series — “The Health Data Goldilocks Dilemma: Sharing? HIPAA is “leaky” — it expressly allows covered entities and business associates to share data outside of HIPAA, including selling de-identified data, without patient consent.


Data Well-Being: A Pillar of Health Citizenship for US Consumers

Health Populi

consumers believe they have an obligation to share personal health information to stop the spread of the coronavirus. However, only 44% would be willing to share their personal data with a national database, a MITRE study learned. If data are to be shared, U.S.

Addressing Health Equity Must Include Digital Equity Beyond Access To Medical Services and Insurance

Health Populi

The 21st Century Cures Act emphasizes patients’ control of personal health information. ONC rules issues in March 2020 called for more patient-facing health tools and apps to bolster health consumer engagement and empowerment. Health Populi’s Hot Points: As the U.S.

The Digital Consumer, Increasingly Connected to Health Devices; Parks Associates Kicking Off #CES2021

Health Populi

But the coronavirus era also saw broadband households spending more on connecting health devices, with 42% of U.S. consumers owning digital health tech compared with 33% in 2015, according to research discussed in Supporting Today’s Connected Consumer from Parks Associates.

Our Homes Are Health Delivery Platforms – The New Home Health/Care at CES 2021

Health Populi

But for those of us working with and innovating solutions for health and health care, #CES2021 was baked with health goodness , in and beyond “digital health” categories. Heart health at home. The increasingly smart bathroom for health.

Health Consumers Expect Healthcare to be Digital (and Secure), Philips Future Health Index Finds

Health Populi

Health care system financing, delivery, and workflows widely vary across nations around the world. Philips surveyed health care professionals and consumers living in 15 countries, from North America to Asia, and found that these health systems share one over-arching objective: to provide quality care with improved experiences for both patients and healthcare professionals. Patients view their health care professionals as “sherpas” to digital health data.

A Tale of Two Americas as Told by the 2019 OECD Report on Health

Health Populi

That’s what came to my mind when reading the latest global health report from the OECD, Health at a Glance 2019 , which compares the United States to other nations’ health care outcomes, risk factors, access metrics, and spending. Stalled gains in longevity, with greater burdens of chronic disease and ill mental health, are growing risk factors throughout so many of the wealthiest nations on Earth. health care versus the OECD peer nations. health care system.

Open Table for Health: Patients Are Online For Health Search and Physician Reviews

Health Populi

Seeking health information online along with researching other patients’ perspectives on doctors are now as common as booking dinner reservations and reading restaurant reviews, based on Rock Health’s latest health consumer survey, Beyond Wellness for the Healthy: Digital Health Consumer Adoption 2018. The growth of tracking and wearable tech is moving toward more medical applications beyond fitness and wellness, Rock Health found.

Prelude to Health 2.0 2019: Thinking Consumers At the Center of Digital Health Transformation

Health Populi

“Digital transformation” is the corporate strategy flavor of the moment across industries, and the health are sector isn’t immune from the trend. As this 13th year of the annual Health 2.0 Conference kicks off this week, I’m focused on finding digital health innovations that engage people — consumers, caregivers, patients, health citizens all. As Health 2.0 This week, Health 2.0 The post Prelude to Health 2.0

Will Technology Cure Americans’ Health Care System Ills? Considering Google and Ascension Health’s Data Deal

Health Populi

“Google’s ‘Project Nightingale’ Gathers Personal Health Data on Millions of Americans,” the Wall Street Journal reported in today’s paper and on the WSJ.com website. The story started with the scenario that, “Search giant is amassing health records from Ascension facilities in 21 states; patients not yet informed.” Ascension is the second largest health system in the U.S., health care.

A Matter of Trust, Perception, Risk, and Uncertainty – The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions

Health Populi

If you’re in health care and don’t live under a rock, you have probably heard that United Health Group (UHG) has acquired PatientsLikeMe (PLM). A sum of their data? First, some of the backstory: PLM was way ahead of its time, recognizing the power of peer-to-peer connections and the importance of data as currency long before many others in health care figured that out. citizens’ personal data. Give people’s data to a big insurer?

In 2020, PwC Expects Consumers to Grow DIY Healthcare Muscles As Medical Prices Increase

Health Populi

Internally, health industry business leaders are prioritizing several workforce strategies in the new year, first and foremost to confront digital transformation. But on the road to digital transformation, health care organizations will encounter barriers and a bumpy journey.

How Digital Health Can Stimulate Economic Development

Health Populi

It’s National Health IT Week in the US, so I’m kicking off the week with this post focused on how digital health can bolster economic development. As the only health economist in the family of the 2018 HIMSS Social Media Ambassadors, this is a voice through which I can uniquely speak. A lesser-known component of ARRA was Title XIII, the HITECH Act, which funded hospitals’ and physicians’ adoption of electronic health records systems (EHRs).

Pharma Spending Gone Bipolar: Generics At One End, Specialty Drugs on the Other

Health Populi

a report from the IQVIA Institute for Health Data Science. billion OOP for prescription drugs: OOP costs include copayments, coinsurance, payments during the deductible phases of health insurance, or retail payments for drugs due to the lack of prescription drug insurance coverage. As of March 2018, there were over 3 million data points on over 600,000 drug ratings in the SERMO database, which the company terms “the FICO score for drugs.”

Contact Tracing: 10 Unique Challenges of COVID-19


The latest in the series: “The Health Data Goldilocks Dilemma: Sharing? Read the full article on The Health Care Blog. Health Policy/Reform contact tracing COVID-19By Vince Kuraitis, Eric Perakslis, and Deven McGraw.

Pending Federal Privacy Legislation: A Status Update


This post is part of the series “The Health Data Goldilocks Dilemma: Privacy? Read the full post on The Health Care Blog. In reviewing all of the privacy and data protection legislation that has been proposed to date, the privacy bills differ significantly in their approaches. Health Policy/Reform Information & Communication Technologies (ICT) CCPA GDPR privacy privacy legislation techlashBy DEVEN McGRAW and VINCE KURAITIS.

Patients, Health Consumers, People, Citizens: Who Are We In America?

Health Populi

“Patients as Consumers” is the theme of the Health Affairs issue for March 2019. Health care consumerism is a central focus in my work, and so it’s no surprise that I’ve consumed every bit of this publication. [In patients in 2019 — patients, consumers, people, health citizens? This concept can be potentially harmful, they believe, assuming that health care is a traditional market.

Melinda Gates: This is not a once-in-a-century pandemic.

Henry Kotula

To effectively roll out a vaccine, Gates believes you need to first give it to health workers, then to high-risk groups, then distribute it equitably to different countries and communities. That is, they have underlying health conditions, some of the ones that we’ve talked about before.

President Clinton speaks at #HIMSS13 today

Medicine and Technology

He spoke about a number of public health topics ranging from worldwide healthcare disparities, the pediatric obesity epidemic, and the need to provide patients with their own health data so that they can be empowered to manage their own health. For example, do you know anyone who doesn't have health insurance? How well do you understand how they are navigating the health care system in this country?

Essential Telemedicine Terms Clinicians Should Know

Enzyme Health

CCHP: CCHP stands for the Center for Connected Health Policy and is a non-profit that has been designated the national telehealth policy resource center. The organization researches telehealth policy issues and keeps updated information on state telehealth laws and reimbursement. CMS is the federal agency that administers HIPAA standards and develops Medicaid and Medicare reimbursement policies for telemedicine.

Tufts’ Peter Neumann and cost-effectiveness analysis – Better health through better measurement – Harlow On Healthcare

Health Blawg

Peter is the Director of the Center for the Evaluation of Value and Risk in Health ( @TuftsCEVR ) at the Institute for Clinical Research and Health Policy Studies at Tufts Medical Center ( @TuftsMedicalCtr ), and is a professor of medicine at the Tufts University School of Medicine. The subjective value judgments are at the heart of policy discussions, but the objective measurements help ground the discussion. Health Care Law and Consulting.

Tufts’ Peter Neumann and cost-effectiveness analysis – Better health through better measurement – Harlow On Healthcare

Health Blawg

Peter is the Director of the Center for the Evaluation of Value and Risk in Health ( @TuftsCEVR ) at the Institute for Clinical Research and Health Policy Studies at Tufts Medical Center ( @TuftsMedicalCtr ), and is a professor of medicine at the Tufts University School of Medicine. The subjective value judgments are at the heart of policy discussions, but the objective measurements help ground the discussion.

ATA Policy Summit: Telemedicine Policy Topics Ripped from the Headlines


The program for the ATA Federal Telemedicine Policy Summit (June 27-28 in Washington, DC) is designed to give you insider perspective on the big policy issues facing remote healthcare. We all know what these policy hot topics are—they’re splayed throughout the industry press on a daily basis. In a sense, the program for the Policy Summit is ripped from the headlines. Mary Wakefield, PhD, RN Administrator, Health Resources and Services Administration, U.S.

DeepMind Health could gain ?excessive monopoly power? says new report

Lloyd Price

DeepMind’s foray into digital health services continues to raise concerns. The latest worries are voiced by a panel of external reviewers appointed by the Google-owned AI company to report on its operations after its initial data-sharing arrangements with the U.K.’s s National Health Service (NHS) ran into a major public controversy in 2016. However, we would urge DeepMind Health to set out publicly what they are proposing,” they add.