Following in the Footsteps of Others to become an Empowered Patient Advocate
Society for Participatory Medicine
SEPTEMBER 13, 2021
I didn’t want to tell anyone about my diagnosis. I thought my family and a few close friends were enough. But I got brave one day four years ago and posted about it on social media. The outpouring of support was incredible. I thought, if I’m receiving this much support, I wondered if what I was going through could inspire others. I reached out to a colleague at a healthcare advocacy organization, and he introduced me to Seth Rotberg , who told me how he got started in the patient advocacy world.
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