When a Genetic Counselor Brought Information – and Comfort
Society for Participatory Medicine
MARCH 6, 2023
Editor’s note: In her book, Rare Like Us: From Losing My Dad to Finding Myself in a Family Plagued By Genetic Disease , Taylor Kane shares the invaluable lessons she learned growing up in a family plagued by a genetic disease so rare that most doctors have never seen it, much less heard of it. Kane is founder and president of Remember the Girls , an international non-profit organization that unites, educates and empowers female carriers of x-linked genetic disorders.
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