We’re excited to share the topic and questions for this week’s #HITsm chat happening Friday, 9/17 at Noon ET (9 AM PT). This week’s chat will be hosted by Grace Vinton (@HITeawithGrace) from @AmendolaComm on the topic “The Patient Voice.”
We are seeing the terms “Patient Voice” and “Patient Perspective” pop up more often across the digital health ecosphere. What do they mean? And why are these terms popping up now?
Throughout the years, I’ve had some deep one-on-one conversations with healthcare, HIT, and life sciences leaders and innovators in the digital health space. I’ve shared my personal experience working in HIT communications, going through a serious health event after giving birth to my third child, and then living with seemingly undiagnosable chronic pain that spring-boarded me towards an unexpected and challenging year-and-a-half-long journey to get answers. I was lucky to know the space and how to be an advocate for my own care, to finally get answers and treatment for my pain, and to now be healthy again, but I’ve also seen a serious shift in my perspective of the HIT innovation and communications process after having been a seriously sick patient just trying everything possible to get better. Perhaps my sickness wasn’t weakness, it was a superpower of sorts giving me new vision?
It has surprised me that my story matches or mirrors many of those I’ve shared it with in this space. Digital health professionals with many years under their belt, their world rocked by a terrifying health event for themselves or a loved one, and then (with answers or without answers) diving back into their work with fresh eyes and a mission. I’ve also spoken with other patients of all kinds – not currently in this space – that can also see clearly how sharing their own healthcare journeys could positively impact clinical operations and even outcomes.
Let’s talk about the power of patient insight and if/when it should be included in the digital health innovation process. I look forward to chatting with you all as we put one patient shoe on the left foot and one digital health innovator’s shoe on the right.
Join us for this week’s #HITsm chat where we’ll discuss the following questions and topics.
Topics for this week’s #HITsm Chat:
T1: In relation to digital health innovation, what does the “patient’s voice” and “patient’s perspective” refer to? #HITsm
T2: On a scale from 1-10, how much is the patient’s voice currently included in the digital health innovation process now? Has the COVID-19 pandemic impacted this at all? #HITsm
T3: What value does a patient’s story and insight bring to the table in a digital health innovation strategy session? When should the patient’s perspective be included in the digital health innovation strategy and development process? #HITsm
T4: Do you think it’s valuable for informaticists to access and share their own experiences as “patient” in the innovation process? How about digital health CEOs? Explain why or why not. #HITsm
T5: Are there any patient perspective forums or platforms that exist now to amplify the patient’s voice and perspective? Any podcasts we should be aware of? Companies that incorporate the patient voice particularly well? Tag ‘em! #HITsm
Bonus: What do you think is the best outcome from including the patient perspective and experience in the innovation process? What healthcare stakeholders benefit the most? #HITsm
Upcoming #HITsm Chat Schedule
9/24 – Culture’s Role in Healthcare
Hosted by Abner Mason (@abnermason) from @ConsejoSano_US
10/1 – Building a Health IT Startup in a Highly Competitive Marketplace
Hosted by Kelly Benning (@KellyBChurch)
10/8 – Fhun with FHIR
Hosted by Jeremy Coleman (@JeremyColeman)
10/15 – TBD
Hosted by TBD
10/22 – TBD
Hosted by TBD
10/29 – TBD
Hosted by Julie Maas (@JulieWMaas) from @EMRDirect
We look forward to learning from the #HITsm community! As always, let us know if you’d like to host a future #HITsm chat or if you know someone you think we should invite to host.
If you’re searching for the latest #HITsm chat, you can always find the latest #HITsm chat and schedule of chats here.
