tag rare-diseases 
Health Populi
JUNE 8, 2022
They are never seen in the same room at the same time, working as “Clark Kent and Superman” – tag-teaming with love, resilience, and faith. [To Stacy first stepped a toe into social media via online support groups focused on rare diseases for Emmett.
Aging in Place Technology Watch
MAY 26, 2022
Many will need to be monitored in their home for chronic diseases and in-home risk of falling – Amazon noticed with Alexa Together – Verizon noticed with its Care Smart Watch. Finally, the CMS- created codes for remote patient monitoring (RPM) can be used for reimbursement of chronic disease monitoring services.
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Insulin Nation
SEPTEMBER 11, 2017
This is a fairly rare form of diabetes that causes wide blood sugar swings without any reason or warning. Together we traveled around the country, talking about my experience with the disease and learning about its impact on the lives of others. As the internet grew, I became involved in websites and chat rooms about the disease.
GlobalMed
MAY 28, 2019
When a medical emergency hits – say, a car accident or a heart attack – no one’s first concern should be about the price tag attached to the ambulance or medical air transport. But the sad truth is that many patients will avoid requesting emergency transportation because they fear the cost. million in patient transport costs.
Lloyd Price
FEBRUARY 22, 2024
Technology: Biometric sensors in wearables like Empatica's E4 wristband and Spire Health's Health Tag monitor stress levels, heart rate variability, and skin conductance, providing insights into pain management strategies.
Insulin Nation
SEPTEMBER 11, 2017
This is a fairly rare form of diabetes that causes wide blood sugar swings without any reason or warning. Together we traveled around the country, talking about my experience with the disease and learning about its impact on the lives of others. As the internet grew, I became involved in websites and chat rooms about the disease.
Healthcare Exchange Standards
FEBRUARY 20, 2019
Some data are themselves sensitive: Lab results showing positive tests for sexually transmitted disease, Genetic results showing higher likelihood for a hard to treat condition, Diagnosis of substance abuse. It can also happen that a sensitive result may become less sensitive, although I expect this to be rare. or "Deny all access."
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