heres-why-clinical-trials-are-more-important-than-you-might-think 
Society for Participatory Medicine
DECEMBER 6, 2022
He has had five major abdominal surgeries, more than 50 rounds of chemotherapy and immunotherapy, and has participated in a clinical trial at The Johns Hopkins Hospital. About a year into my cancer journey, I was interested in learning about clinical trials. They weren’t being malicious.
Society for Participatory Medicine
APRIL 10, 2019
It was about something I wrote here, not having a clue it was any kind of a big thing, but it ended up on the front page of the Boston Globe on April 13. That’s why standards are important.). As you’ll see below, I was highly skeptical because of trust about privacy. Here’s part 1. (I’ll
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Insulin Nation
FEBRUARY 21, 2017
If you transferred a group of mice from a lab with a lower rate of diabetes to a lab with a higher rate, the transferred group would soon exhibit the same rate of diabetes found in the new surroundings. This could mean that there is an important window of time when the guts of infants can be trained to shield from Type 1 diabetes.
Healthcare Exchange Standards
NOVEMBER 10, 2017
keeps fidgeters occupied while not bothering others around them That is to say they are not protecting an individual's Privacy, where a failure here is permanent loss of privacy. They are not protecting an individuals health, where a failure might be pain, loss of function, or death. They are all fully committed and excited.
Society for Participatory Medicine
JANUARY 12, 2021
Designing clinical trials for and with people with Traumatic Brain Injury. You know the old story of the researcher looking for their lost keys under the streetlight when they lost them in the dark alley. The researcher might not know that they’ve lost their keys. I managed and designed all sorts of clinical trials.
Health Populi
JULY 1, 2019
The closer you get to the fire the more you get burned. If you’re in health care and don’t live under a rock, you have probably heard that United Health Group (UHG) has acquired PatientsLikeMe (PLM). By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen. I’ve lived long enough to have learned. A sum of their data?
mHealth Insight
APRIL 5, 2018
Here, we discuss five interrelated reasons as to why mHealth has under delivered and highlight challenges and opportunities for mHealth researchers” I think this is a popular myth held by researchers. In the real world (as I wrote here in 2009) successful mHealth applications are already commonplace across the world.
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