Society for Participatory Medicine
FEBRUARY 1, 2023
The FDA issued a series of four patient-focused drug development (PFDD) guidance documents which outline how patient co-design needs to successfully happen. The post Patients and Industry: Starting Our New Life Together in 2023 appeared first on SPM Blog. You may now kiss the cancer survivor.
Society for Participatory Medicine
AUGUST 17, 2022
For a person like me, who is impacted by a rare, neurological, and incurable disease, it’s my mission to ensure that patients’ perspectives are represented early and throughout drug development. We plan to gather these stakeholders at the upcoming Huntington Study Group conference this November 3-5 in Tampa, FL, to develop next steps.
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Society for Participatory Medicine
JANUARY 27, 2022
But returning to Erin Moore’s point, how do we get researchers, clinicians, and industry engaged to listen to patients in clinical trial design, pharma/biotech drug development and health tech capability? The post Let’s Save the Date and Make Patient Engagement Official in 2022 first appeared on SPM Blog.
Society for Participatory Medicine
JANUARY 11, 2022
Meaningfully incorporating this insight in all areas of our work must be the cornerstone of participatory medicine for drug development and access. The post Building a Framework for Authentic Patient Centricity first appeared on SPM Blog. Companies are organized to deliver the results they get. Did you enjoy this post?
Society for Participatory Medicine
MARCH 1, 2022
I enrolled in the Jain Foundation’s natural history study in 2012, and it tracked me for four years, providing data on my disease progression and biomarkers that are essential if companies are going to become interested in drug development. Social media, for all its drawbacks, serves its purpose well in this regard.
Society for Participatory Medicine
AUGUST 23, 2022
The post The Keys to Good Relationships With Your Care Teams first appeared on SPM Blog. I was recently on a podcast sharing an example of a negative experience I had with my doctor and it made me think about trust between patients and their doctors, and how vital communication is. Learn more at www.ellabalasa.com.
The Digital Health Corner
MARCH 26, 2018
I hope and believe that all of the above roles I engage in add to the quality of this blog. Blockchain technology’s potential impact on the life sciences industry (drug development, distribution and prescribing) is significant. It can impact the opioid crisis and improve tracking drugs in the supply chain.
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